Our very own Canadian Association for Porphyria Treasurer, Derry Wilcox, was featured on the November 6th episode of “Rarely Discussed,” an American Porphyria Foundation podcast.

The International Congress of Porphyrins and Porphyrias (ICPP) is a major international conference that brings together porphyria researchers, doctors, patient groups and industry stakeholders to present on the latest advancements in porphyria research, treatment and care.

The Canadian Association for Porphyria was fortunate to have three members of the CAP team attend the ICPP.

Patient Voice spoke with Michelle Capon about the immense mental and physical impact that porphyria can have on those who live with the rare condition.