Porphyria News

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Kelly Burns tells her story to CTV

Last year, our own Vice-President of the board, Kelly Burns, was appeared on a segment of Canadian Health & Family on CTV Toronto to tell her story about living with Porphyria.

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Message from the President

As the year draws to a close, we are proud to reflect on the significant strides we've made together. Thanks to the collective efforts of our board, volunteers, partners and supporters we have been able to strengthen our financial foundations, expand our social media presence and deepen our connections with patients and healthcare professionals across Canada.

Throughout the year we have actively participated in key conferences including ICPP, CORD, NRBDO and Global Skin.»

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Canadian Association for Porphyria attends the International Congress of Porphyrins and Porphyrias in Pamplona, Spain

The International Congress of Porphyrins and Porphyrias (ICPP) is a major international conference that brings together porphyria researchers, doctors, patient groups and industry stakeholders to present on the latest advancements in porphyria research, treatment and care.

The Canadian Association for Porphyria was fortunate to have three members of the CAP team attend the ICPP.

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EPP Story Featured on Patient Voice

Patient Voice spoke with Michelle Capon about the immense mental and physical impact that porphyria can have on those who live with the rare condition.

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