EPP Story Featured on Patient Voice

Screen grab of CAP President Michelle Capon’s story on Patient Voice

When someone asks what it feels like for me to be in the sun, I tell them that it’s like being burned alive. It’s like someone took a match to me and set my skin on fire.
— Michelle Capon

Raising awareness of porphyria is crucial to ensuring that porphyria is recognized and diagnosed. Canadian Association for Porphyria partnered with Patient Voice to share Michelle’s EPP story.

You can read it here.

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Canadian Association for Porphyria attends the International Congress of Porphyrins and Porphyrias in Pamplona, Spain