Events and Meetings
Meet others who understand what you’re going through. Hear from special guests who can help you navigate your porphyria journey.
Upcoming Events
February 28, 2025 is Rare Disease Day and we will be taking time to mark the occasion as we work to achieve greater knowledge and acceptance for porphyria and all rare diseases around the globe.
We hope you will join us for this and all the special events we have planned in 2025!
Watch Canada #LightUpForRare
People around the world are invited to light their own homes in Rare Disease Day colours on February 28th. Our Vice President, Kelly Burns, will be working tirelessly to see some of Canada’s most well known landmarks shining bright as well!
Watch this page for a comprehensive list of locations that will #LightUpForRare this February!
Light up Locations
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Burnaby
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Edmonton
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PAST EVENTS
Turn Canada #PurpleforPorphyria 2024
On May 18, 2024, we joined our friends around the world to raise awareness of porphyria and advocate for greater access to diagnosis and treatment.
Many of our Canadian landmarks turned purple too!
Light up locations
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Burnaby: City Hall and Guideway, May 18
Coquitlam: Lafarge Lake & along Pinetree Way May 15
Duncan: World’s Largest Hockey Stick Cowichan May 18
Esquimalt: Archie Browning Sports Centre May 18
Esquimalt: Waterpark May 18
Nanaimo: City of Nanaimo Bastion May 18
Port Coquitlam: City Hall on May 18
Saanich: City Hall May 18
Surrey: Civic Plaza, May 18
Trail: Victoria Street Bridge, May 18
Vancouver: BC Place May 18
Vancouver: City Hall May 18
Vancouver: The Burrard Street Bridge May 18
Vancouver: Convention Centre May 18
Vancouver: Olympic Arms of the Cauldron
Vancouver: Science World, May 18
Vancouver: Sails of Light May 18
Vancouver: Bloedel Conservatory May 19
Vancouver: Pacific Coliseum May 18
Victoria: B.C. Legislature May 18
Victoria: City Hall May 18
Whistler: Fitzsimmons Bridge May 18
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Calgary: Reconciliation Bridge, May 19
Edmonton: High Level Bridge on May 18
Fort MacMurray: Saline Pedestrian Bridge May 18
Grande Prairie: Centre 2000 Sundial May 18
Lethbridge: City Hall, May 18
Red Deer: City Hall May 18
Sylvan Lake: Lighthouse, May 18
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Moosejaw: Sask Clock Tower will be LIT PINK May 17-21
Regina: City Hall May 17-20
Saskatoon: Sasktel Centre on May 18
Saskatoon: TCU Place May 18
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•Selkirk: Selkirk Water Tower May 18
•Winnipeg: Esplanade Riel Bridge May 18
•Winnipeg: Winnipeg Sign May 18
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Barrie: Love Barrie Sign May 18
Belleville: Mayor Proclamation only May 18
Brampton: Clock Tower May 18
Burlington: Brant Street Pier May 18
Chatham-Kent: Civic Centre Atrium May 17-20
Collingwood: Clock Tower & Proclamation May 18
Fort Erie/Buffalo NY: Peace Bridge May 18
Guelph: Market Square May 18
Hamilton: Hamilton Sign May 18
Kingston: City Hall May 19
Kitchener: Carl Zehr Square May 18
Kitchener: City Hall May 18
Kitchener: THE MUSEUM May 18
London: City Hall May 18
London: JA Taylor building May 18
London: Canada Life May 18
London: RBC London Place May 18
London: Sifton properties on Dufferin May 18
Mississauga: Civic Centre Clock Tower May 18
Newmarket: Fred. A Lundy Bridge May 17
Newmarket: Riverwalk Commons May 17
Niagara Falls: May 18 10pm EST
Oakville: Town Hall May 18
Ottawa: Ottawa Byward Market Sign May 18
Ottawa: Shaw Centre May 18
Peterborough: City Hall May 18
Sarnia: City Hall May 18
Toronto: CN Tower May 18
Toronto: Toronto Sign May 18
Vaughan: City Hall May 18
Waterloo: Uptown May 18
Windsor: Caesars Windsor May 18
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Montreal: La Grande Roue May 18
Montreal: The Montreal Tower May 18
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Fredericton: City Hall May 18
Moncton- Downing Street May 18-19
Moncton: Downtown Place May 18-19
Moncton: Avenir Centre May 18-19
Moncton: Ian Fowler Oval, May 18-19
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Charlottetown: City Hall Tower May 18
Summerside: City Hall May 18
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New Glasgow: Glasgow Square Theatre May 18
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Ganders: Town Hall May 17-18
Mount Pearl: City Hall on May 18
ST Johns: Town Hall March 20-26
ST Johns: Confederation Building May 18