Advocate of EPP Treatments
New treatments for EPP are being developed (MT-7117 and Bitopertin) and approved (Scenesse). We need your help to ensure that Canadians can get access to these treatments.
You can support these efforts by helping us to:
Collect patient’s experiences and creating submissions for approval processes
Build a network of doctors who treat EPP
Raise awareness of porphyria
Sharing your experiences with elected officials
Contact us to discuss how you can be involved!